2 Replies
      Latest reply on Jan 4, 2016 6:43 PM by KMT
      jonathan.locke Level 1 Level 1 (0 points)

        I don't really see a space where Lyme Disease would fit in the Research Kit forum. Late stage Lyme would fit under neurodegenerative diseases, but earlier stages of infection are not necessarily neurological. Could we add spaces for infectious and/or chronic diseases? Lyme and other chronic illnesses badly need research because they are so incredibly poorly understood.

         

        We desperately need more research data on tick-borne infections. Lyme is now the fastest growing vector-borne infectious disease in the US, with more than 300,000 new cases per year according to the CDC. It now affects 6x more people than HIV/AIDS and causes lifetime health problems for about 20% of those infected and yet it still gets less than 1% of the funding.

         

        As an application developer and amateur researcher now suffering for years from this terrible illness, I badly want to see a Research Kit application written to collect data on Lyme, but I'm not sure how to get started. Is anyone working on this problem yet?

         

        Thanks,

         

           Jonathan